State Palliative Care Report Published, Work Group Seeks New Members

October 11, 2017

Last year, the state of Massachusetts’ Palliative Care Work Group commissioned the JSI Research & Training Institute to conduct a statewide and regional assessment on palliative care. In addition to reviewing the quality of palliative care in various settings, the report examined both accessibility and the factors that affect it. The work group, which is housed in MA Department of Public Health’s Comprehensive Cancer and Prevention Control Network, recently published the report. It examines availability of various models of care (e.g., hospital vs community-based), and the intersection of access and reimbursement, as well as public misconceptions and the need for more education. The report looks at access to care on a regional basis and includes an interactive map of identified palliative care services.

Screenshot of the report’s interactive map.

HCA of MA has also identified distinct palliative care programs on our consumer pages. Our online directory now includes a specific category for palliative care, and lists a total of eleven agencies that responded with information about palliative care to our recent survey.

As this work progresses, the state’s Palliative Care Work Group is looking for additional members to help provide consistent messaging about palliative care across the state. The next Work Group meeting will be Thursday, October 19, 2017, 11 AM – 1 PM at the American Cancer Society in Framingham.

Please email Colleen Bayard, cbayard@thinkhomecare.org if you would like to join the work group.

Return to www.thinkhomecare.org.


Portraits of CareGiving – Enter Now!

September 20, 2017

To celebrate November as National Home  Care Month, the Home Care Alliance wants to put your picture up in the MA Statehouse!   So get out your iPhones and even — if you’d like — your selfie sticks, and send us a photograph of a day or a moment in your home care life!  The photographs will hang the first week in November,  and we hope they will tell in pictures a story of what you do every day across the entire Commonwealth to support those who are often invisible to elected officials and other parts of the health care system.

So get creative with it and let us show them what you do!

Find all of the details here.

Return to www.thinkhomecare.org.


Skilled Nursing Campaign Garners Media Attention

August 9, 2017

This week, the Alliance’s parent-provider skilled nursing campaign received national media coverage. The campaign seeks higher reimbursement rates from MassHealth for continuous skilled nursing services. Currently, agencies are unable to compete for nurses with area hospitals, and has led to a 37% nurse turnover rate, and nearly 24% of MassHealth-Authorized service hours going unfilled.

On Sunday, The Boston Globe featured a front-page story into the life of one of the parents caring for a child in the Massachusetts Continuous Skilled Nursing Program. Noelia Ferreira has gone over 100 days without a skilled nurse coming to her home to care for her daughter Abi. The article beautifully explains Noelia’s struggles to find adequate care and her commitment to keeping Abi safe at home.

As a result of this front page feature, WGBH invited Noelia and MA Pediatric Home Nursing Care Campaign founder, Angela Ortiz, to be interviewed by host, Jim Braude. Footage of the interview can be viewed here.

The campaign is leveraging this exposure to raise awareness and momentum in our fight for adequate reimbursement rates. Please visit www.mychildcantwait.com to write or call Governor Baker urging action.


Alliance Statement on NAHC President Val Halamandaris’ Passing

July 28, 2017

The Home Care Alliance of Massachusetts is deeply saddened by the passing of Val J. Halamandaris, president of the National Association for Home Care & Hospice (NAHC).

Val dedicated most of his professional life to public service, and transformed the home care industry over the last five decades by fighting for elderly, disabled, and dying Americans. For 20 years, he served as counsel to the Senate and House Committees on Aging before founding NAHC and serving as its president for the last 30 years.

When Val started at NAHC, home care wasn’t what it is today. Institutionalization of the elderly was the standard, and Val sought to change the United States’ policy on this fundamental issue.

“The home care industry suffered an enormous loss this week. Val Halamandaris’ dedication to fighting for Americans’ rights to age in their homes and receive the care that they deserve was unprecedented.We all mourn this loss, but celebrate his 50 years of commitment to our most vulnerable,” said Alliance Board Chair, Holly Chaffee.

Val is survived by his wife, Kathleen, three sons, their wives, six grandchildren, and his brother. A funeral mass will be held for him at 10:00 am on Saturday at St. Peter’s Roman Catholic Church on Capitol Hill in Washington, D.C. In lieu of flowers, memorial contributions may be made to the Caring Institute.

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Recognizing Heart and Courage – Our Time to Shine 2017

July 10, 2017

(l-r): Home Care Champions Lisa Burgess, Lauri Medeiros, Susan McCarthy, Angela Ortiz. Far right: Northeast Clinical Services Exec. Director Diane Carrabine.

As is always the case, the annual Our Time to Shine awards ceremony was filled with emotional moments about the challenge-reward dynamic that is working in home care. Our two Home Health Aides of the Year — Gach Clamp of Emerson Hospital Homecare and Nancy Quinlan of Aberdeen Home Care — were both supremely eloquent about the personal family care giving experiences that led them to second careers in home care.

It was, however, our Home Care Champions – the parent-led Massachusetts Pediatric Home Nursing Care Campaign (pictured above) – that really pulled together the story and impact of home care. Campaign founder Angela Ortiz – speaking for fellow parent awardees Lisa Burgess, Sue McCarthy, and Lauri Medeiros – described their campaign to get nursing reimbursement rates from MassHealth raised for the nurses caring for their children.

Angela painted an impassioned picture of the lives of these families, especially when hours of care that are needed and authorized go unfilled. She explained the tremendous family strain, particularly affecting the siblings, and the countless admissions to hospital ICUs. This unnecessary pain and suffering that could be mitigated, she said, with more home nursing support.

Angela wove themes into her talk from her daughter, Ayla’s, favorite movie, The Wizard of Oz, and the love that is the basis of all these families do to care at home for their medically complex children. The hours of work the families have put into the campaign, and the partnership with the agency providers that has formed, serve as a model for any advocacy group. While there is much more relief needed to get the Continuous Skilled Nursing rates to a place where agencies can compete with specialty hospitals for nurses, the state has raised rates by nearly 5% in one year, a direct result of this tireless campaign.

When the parents show the courage to stand up at a hearing to tell their story and they are fueled – said Angela – by the message behind Dorothy’s journey “There is no place like home.”

We couldn’t agree more, Angela. Congratulations: It’s an honor to work with you.

2017 Star Award Winners

Gach Clamp Nancy Quinlan David Ahern Carlton Jorge David Prybyla
Gach Clamp Nancy Quinlan David Ahearn Carlton Jorge David Prybyla
— Aides of the Year — — Clinicians of the Year — Physician of the Year
Emerson Hospital Homecare Aberdeen Home Care Baystate Home Health Community Nurse Home Care Orthopaedics Surgical Associations

 

Arline McKenzie Susan Proulx-Galster Rep. Aaron Vega
Arline McKenzie Susan Proulx-Galster Rep. Aaron Vega
— Managers of the Year — Legislator of the Year
Walpole Area VNA Circle Home (D-5th Hampden)

For more on the awardees, go here.

Return to www.thinkhomecare.org.


2017 Star Awards, Innovation Showcase Winners Announced!

June 2, 2017

The Home Care Alliance of Massachusetts is pleased to announce its 2017 industry innovators and stars. Awardees will be celebrated during the Innovations Showcase & Star Awards on June 20 at the Granite Links Golf Club, Quincy.

The 2017 honorees include:


Aides of the Year

Gach Clamp, HHA, Emerson Hospital Homecare, Concord

Nancy Quinlan, CNA/HHA, Aberdeen Home Care, Danvers


Clinicians of the Year

David Ahearn, MSW, Baystate Home Health, Springfield

Carlton Jorge, RN, Community Nurse Home Care, Fairhaven


Managers of the Year

Arline McKenzie, Nursing Manager, Walpole Area VNA

Susan Proulx-Galster, Hospice & Palliative Care Program Manager, Circle Home, Lowell


Physician of the Year

David Prybyla, MD, Orthopaedics Surgical Associates, North Chelmsford


Home Care Champion

MA Pediatric Home Nursing Care Campaign


Legislator of the Year

Representative Aaron Vega (D-Holyoke)


Innovation Winners

HouseWorks, Newton:  Instant Hire Event

Southcoast VNA, Fairhaven:  Camp Angel Wings

Brockton VNA:  Lean Process Management


These awards celebrate the exceptional accomplishments of the everyday heroes in our midst who make incredible differences in the lives of their patients/clients and their families. Though there are too few opportunities to recognize all who deserve one, a STAR award brings well-deserved recognition for both the agency and the individuals.

Granite Links

Granite Links Golf Club

Please join us on June 20 as we salute and celebrate the best programs and people in our industry today!

Return to www.thinkhomecare.org.


Alliance Quoted in Article on Worker Training, Background Checks

December 28, 2016

James Fuccione, former Director of Legislative and Public Affairs for the Home Care Alliance, was extensively quoted in an article in the Springfield Republican today.  The article, “Personal care attendants have less training, checks than other home care workers,” by Shira Schoenberg, Statehouse reporter for the Republican, compares background checks and training requirements for workers in the state Personal Care Attendant program with workers employed by home care agencies that provide services under the Executive Office of Elder Affairs home care program.


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