State Palliative Care Report Published, Work Group Seeks New Members

October 11, 2017

Last year, the state of Massachusetts’ Palliative Care Work Group commissioned the JSI Research & Training Institute to conduct a statewide and regional assessment on palliative care. In addition to reviewing the quality of palliative care in various settings, the report examined both accessibility and the factors that affect it. The work group, which is housed in MA Department of Public Health’s Comprehensive Cancer and Prevention Control Network, recently published the report. It examines availability of various models of care (e.g., hospital vs community-based), and the intersection of access and reimbursement, as well as public misconceptions and the need for more education. The report looks at access to care on a regional basis and includes an interactive map of identified palliative care services.

Screenshot of the report’s interactive map.

HCA of MA has also identified distinct palliative care programs on our consumer pages. Our online directory now includes a specific category for palliative care, and lists a total of eleven agencies that responded with information about palliative care to our recent survey.

As this work progresses, the state’s Palliative Care Work Group is looking for additional members to help provide consistent messaging about palliative care across the state. The next Work Group meeting will be Thursday, October 19, 2017, 11 AM – 1 PM at the American Cancer Society in Framingham.

Please email Colleen Bayard, cbayard@thinkhomecare.org if you would like to join the work group.

Return to www.thinkhomecare.org.


Talking Home Care Episode 4: NAHC’s Bill Dombi on HHGM and Federal Home Health Policy

September 24, 2017
Bill Dombi

Bill Dombi, Interim President of NAHC

For the fourth episode of the Talking Home Care podcast, Pat Kelleher talks with Bill Dombi, interim president of the National Association for Home Care & Hospice (NAHC). Topics include:

  • Background on the the Home Health Grouper Model (HHGM) and an update on its status;
  • Discussion of the $950M/year reduction in overall home health spending, as estimated by CMS (and estimated to be much, much higher by NAHC);
  • An update on NAHC’s lobbying efforts, specifically its support of a letter sponsored by Senators Nelson and Rubio to oppose the new model;
  • How we need agencies to contact their representatives immediately (by the end of the Monday, September 25);
  • How cuts may affect the home health workforce; and
  • Holding the Trump Administration to its promise to reduce paperwork administrative overhead.

You may listen to the podcast by clicking the play button above, downloading it directly, or subscribing through iTunes or Google Play. (Length: 29’00”; Size: 14 MB).

Links/Action:

Talking Home Care LogoHost: Patricia Kelleher is the Executive Director of the Home Care Alliance of Massachusetts.

Guest: William Dombi was appointed as NAHC’s interim president this past August, and served as its vice president for law since 1987. He is also director of the Center for Health Care Law, a nonprofit, public interest law firm established by NAHC, and executive director of the Home Care and Hospice Financial Managers Association. Additionally, he is a member of the advisory board of Bloomberg BNA’s Medicare Report.


Don’t want to miss the next episode of Talking Home Care? Subscribe through iTunes, Google Play, or enter the following in your podcast app: https://thinkhomecare.wordpress.com/category/talking-home-care-podcast/feed/

Return to www.thinkhomecare.org.


Portraits of CareGiving – Enter Now!

September 20, 2017

To celebrate November as National Home  Care Month, the Home Care Alliance wants to put your picture up in the MA Statehouse!   So get out your iPhones and even — if you’d like — your selfie sticks, and send us a photograph of a day or a moment in your home care life!  The photographs will hang the first week in November,  and we hope they will tell in pictures a story of what you do every day across the entire Commonwealth to support those who are often invisible to elected officials and other parts of the health care system.

So get creative with it and let us show them what you do!

Find all of the details here.

Return to www.thinkhomecare.org.


Alliance Testifies on Home Care Legislation to Committee on Elder Affairs

August 29, 2017

The Massachusetts Legislature’s Joint Committee on Elder Affairs held a public hearing on July 31, 2017. Several of the bills heard are of interest to home care.

The committee heard testimony on bills relating to:

  • Home Care Licensure/Worker Registries:
    • S.364/H. 341 An Act Strengthening the Massachusetts Home Care Program
    • H. 344 An Act Relative to Consumer Protection and Home Care Services
    • H. 1187 An Act relative to home health and hospice aides
    • H. 2068 An Act Establishing a Home Care Aide Training Registry
    • H. 2889 An Act Strengthening Home Care Services
    • S.343 An Act Establishing a Home Care Aide Training Registry
  • Home Care Workforce Bill (Enough Pay to Stay Initiative)

The Home Care Alliance of Massachusetts and some of its members testified on all of the bills, and you can read that testimony at the links below:

If you have any questions, or would like any further information about these legislative proposals, do not hesitate to reach out to Jake Krilovich at jkrilovich@thinkhomecare.org.


Skilled Nursing Campaign Garners Media Attention

August 9, 2017

This week, the Alliance’s parent-provider skilled nursing campaign received national media coverage. The campaign seeks higher reimbursement rates from MassHealth for continuous skilled nursing services. Currently, agencies are unable to compete for nurses with area hospitals, and has led to a 37% nurse turnover rate, and nearly 24% of MassHealth-Authorized service hours going unfilled.

On Sunday, The Boston Globe featured a front-page story into the life of one of the parents caring for a child in the Massachusetts Continuous Skilled Nursing Program. Noelia Ferreira has gone over 100 days without a skilled nurse coming to her home to care for her daughter Abi. The article beautifully explains Noelia’s struggles to find adequate care and her commitment to keeping Abi safe at home.

As a result of this front page feature, WGBH invited Noelia and MA Pediatric Home Nursing Care Campaign founder, Angela Ortiz, to be interviewed by host, Jim Braude. Footage of the interview can be viewed here.

The campaign is leveraging this exposure to raise awareness and momentum in our fight for adequate reimbursement rates. Please visit www.mychildcantwait.com to write or call Governor Baker urging action.


Talking Home Care Episode 3: Andrea Cohen on Challenges and Successes for Private Home Care

August 9, 2017
Andrea Cohen

Andrea Cohen

The Talking Home Care podcast returns after a summer hiatus. In this third episode, Pat Kelleher talks with Andrea Cohen, co-founder and CEO of HouseWorks, one of the largest and most successful private care home care agencies in Massachusetts. Topics include:

  • A primer on private care home care (what it is, who it serves, what it offers, is it affordable, etc.);
  • How private care agencies earn their clients’ trust;
  • How technology empowers agencies and families alike;
  • What private care agencies are doing to overcome workforce challenges; and
  • What the future holds for the industry in the post-Baby Boom years.

You may directly download the podcast here (Length: 27’54”; Size: 13 MB).

Talking Home Care LogoHost: Patricia Kelleher, Executive Director of the Home Care Alliance of Massachusetts.

Guest: As the co-founder and CEO of HouseWorks, Andrea Cohen’s vision crystalized over 20 years ago when she took care of both of her parents. HouseWorks’s fundamental innovation has been an entrepreneurial approach to service delivery that returns a sense of control to adult children and their parents.

Don’t want to miss the next episode of Talking Home Care? Subscribe through iTunes, Google Play, or enter the following in your podcast app:

https://thinkhomecare.wordpress.com/category/talking-home-care-podcast/feed/

Links:

  1. Secora Care.  A secure, passive, and private remote-monitoring platform.
  2. The Conversation Project. Talking about elders’ wishes for end-of-life care.
  3. Laurie Orlov’s Tech-Enabled Home Care Report.

Return to www.thinkhomecare.org.


Alliance Statement on NAHC President Val Halamandaris’ Passing

July 28, 2017

The Home Care Alliance of Massachusetts is deeply saddened by the passing of Val J. Halamandaris, president of the National Association for Home Care & Hospice (NAHC).

Val dedicated most of his professional life to public service, and transformed the home care industry over the last five decades by fighting for elderly, disabled, and dying Americans. For 20 years, he served as counsel to the Senate and House Committees on Aging before founding NAHC and serving as its president for the last 30 years.

When Val started at NAHC, home care wasn’t what it is today. Institutionalization of the elderly was the standard, and Val sought to change the United States’ policy on this fundamental issue.

“The home care industry suffered an enormous loss this week. Val Halamandaris’ dedication to fighting for Americans’ rights to age in their homes and receive the care that they deserve was unprecedented.We all mourn this loss, but celebrate his 50 years of commitment to our most vulnerable,” said Alliance Board Chair, Holly Chaffee.

Val is survived by his wife, Kathleen, three sons, their wives, six grandchildren, and his brother. A funeral mass will be held for him at 10:00 am on Saturday at St. Peter’s Roman Catholic Church on Capitol Hill in Washington, D.C. In lieu of flowers, memorial contributions may be made to the Caring Institute.

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